Wow - it has been too long since I've update this site. Sorry but things have been busy and Max is doing well. His November scan was stable and his eye exam was fine!
Max had shots and a blood draw at Lehigh Valley today. The blood draw was so that his growth factors could be checked to see if the Sandostatin is still effective enough. Max, the nurses, and the social worker there sang "Part of Your World" from the Little Mermaid while he got his shots. There were some stumbles on the exact lyrics but all in all, it was NOT melodic. It took Max's mind off the shots and that's what counts. He chatted with the nurses for about 30 minutes after the shots about things like Peter Pan movies. Oh, and he looked at pictures of a cat in a toilet bowl - not sure what that was about but he certainly thought it was funny.
Max has been doing very well with the shots which are essentially his only treatment now. He is getting new glasses soon but that is just to update his frames and lens' prescription. We follow up with an MRI in May. If he's stable I think we stay on 6 month follow ups. He also has an appointment with Endocrinology in June when we'll find out if his Sandostatin and Lupron injections are still effective.